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Libros

a) Fundamentación de la bioética (1877)
b) Inicio de la vida (68)
c) Vejez y Final de la vida (176)
d) Genética (48)
e) Enfermedades y tratamientos (68)
f) Investigación y Experimentación con seres human (58)
g) Relación clínica con el paciente (67)
h) Investigación y Experimentación con otros seres (8)
i) Distribución de recursos en sanidad (49)
j) Bioetica y Legislación (114)
k) Comités de Ética (10)
l) Enfermería y Bioética (22)
M) Otros temas (164)
n) Medi ambient (56)


Tenemos 2785 libro(s) en la base de datos

Últimos libros añadidos

Les métiers de la santé face aux industries pharmaceutique, agroalimentaire et chimique Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Paul Scheffer
Edición: L'Harmattan, 2015
ISBN: 978-2-343-05932-7
Precio: 31,35€


Cet ouvrage souhaite aborder la santé humaine à travers une approche croisée des secteurs du médicament, de l'alimentation, et de la chimie, trois branches où l'on retrouve de puissantes industries organisées. Ces dernières ont des intérêts divergents des finalités de la santé publique et pèsent de leur poids sur les processus de décision. Ce livre met en évidence certaines initiatives existantes permettant de contrecarrer ces influences affectant la santé de la population, et articule les savoirs et les pratiques professionnels avec les formations initiales et continues.



Patient Safety: Perspectives on Evidence, Information and Knowledge Transfer Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Editor: Lorri Zipperer
Edición: Ashgate, 2015
ISBN: 978-1-4094-3857-1
Precio: 67,50€


Patient Safety: Perspectives on Evidence, Information and Knowledge Transfer provides background on the patient safety movement, systems safety, human error and other key philosophies that support change and innovation in the reduction of medical error. The book draws from multidisciplinary areas within the acute care environment to share models that support the proactive changes necessary to provide safe care delivery. The publication discusses how the tenets of safety (described in the beginning of the book) can be actively applied in the field to make evidence, information and knowledge (EIK) sharing processes reliable, effective and safe.

This is a wide-ranging and important book that is designed to raise awareness of the latent risks for patient safety that are present in the EIK identification, acquisition and distribution processes, structures, and systems of many healthcare institutions across the world. The expert contributors offer systemic, evidence-based improvement processes, assessment concepts and innovative activities to identify these risks to minimize their potential to adversely impact care. These ideas are presented to create opportunities for the field to design and use strategies that enable meaningful implementation and management of EIK. Their thoughts will enable healthcare staff to see EIK as a tangible element contributing toward sustainable patient safety improvements.



Bioética y ancianidad en una sociedad en cambio Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Editor: Javier de la Torre
Edición: Unviersidad de Pontificia, 2015
ISBN: 978-84-8468-577-7
Precio: 15,20€


Una Europa en que el 20% de la población es mayor de 65 años es una realidad muy distinta a la que podemos observar en países como Brasil o la India. Y si pensamos que España puede llegar en el año 2050 a tener un 34% de mayores debemos reconocer lo que supone de logro social pero también de reto.

El libro aborda de la mano de los mejores especialistas los datos sociodemográficos, la historia de la vejez, los síndromes de la ancianidad (depresiones, demencias, caídas, etc.), los cuidados de larga duración, las relaciones intergeneracionales, las residencias y alojamientos alternativos para personas mayores (viviendas tuteladas, apartamentos con servicios, acogimiento familiar, viviendas compartidas, etc.).

El libro presenta también un nuevo modelo residencial ("En mi casa"), aborda el tema de los mayores, los cuidadores y la espiritualidad desde la psicología (vinculándola a la salud, al sentido, etc.) y ofrece una exploración cinematográfica del anciano desde seis películas que pueden hacer pensar y sentir a todos esta nueva situación. Por este motivo, esta publicación plantea una perspectiva interdisciplinar y novedosa del tema de la ancianidad en el siglo XXI.



Bioética y neurociencias: vino viejo en odres nuevos Actualizado esta semana

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Categoría: a) Fundamentación de la bioética
Autor: José Ramón Amor Pan
Edición: Institut Borja de Bioètica, 2015
ISBN: 978-84-923525-6-2
Precio:25€

El libro busca sugerir, informar, provocar e invitar a nuevas reflexiones, nuevos diálogos sobre neurociencia, el conjunto de disciplinas científicas que estudian la estructura, la función, el desarrollo del sistema nervioso, especialmente del cerebro. Pretende ofrecer, también, un marco ético integral desde el que valorar la neurociencia. Esta afecta de lleno a problemáticas filosóficas de gran calado y que, por consiguiente, merecen una cuidadosa atención por parte de todos, evitando las posturas extremas y las simplificaciones.



Science Between Truth and Ethical Responsibility Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Editores: Mario Alai, Marco Buzzoni, Gino Tarozzi
Edición: Springer, 2015
ISBN: 978-3-319-16368-0
Precio: 107,09€


This book offers the most complete and up-to-date overview of the philosophical work of Evandro Agazzi, presently the most important Italian philosopher of science and one of the most influential in the world. Scholars from seven countries explore his contributions in areas ranging from philosophy of physics and general philosophy of science to bioethics, philosophy of mathematics and logic, epistemology of the social sciences and history of science, philosophy of language and artificial



Thinking the Impossible: French Philosophy Since 1960 Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Gary Gutting
Edición: Oxford University Publishing, 2015
ISBN: 978-0-19-967467-1
Precio: 17,99 Libras


One of the first volumes in the Oxford History of Philosophy
The fascinating story of one of the most turbulent and fertile periods of philosophy
A vivid account of the social and cultural context
Offers Anglophone philosophers a fresh understanding of Foucault, Derrida, Deleuze, Levinas, and Badiou
A sympathetic but critical study of highly contentious thinkers
Relates contemporary French philosophy to the inspirational figures of Hegel, Nietzsche, Heidegger, and Sartre
This new series offers ground-breading narrative history of philosophy for a broad readership in philosophy and history of ideas
The late 20th century saw a remarkable flourishing of philosophy in France. The work of French philosophers is wide ranging, historically informed, often reaching out beyond the boundaries of philosophy; they are public intellectuals, taken seriously as contributors to debates outside the academy. Gary Gutting tells the story of the development of a distinctively French philosophy in the last four decades of the 20th century. His aim is to arrive at an account of what it was to 'do philosophy' in France, what this sort of philosophizing was able to achieve, and how it differs from the analytic philosophy dominant in Anglophone countries.
His initial focus is on the three most important philosophers who came to prominence in the 1960s: Michel Foucault, Gilles Deleuze, and Jacques Derrida. He sets out the educational and cultural context of their work, as a basis for a detailed treatment of how they formulated and began to carry out their philosophical projects in the 1960s and 1970s. He gives a fresh assessment of their responses to the key influences of Hegel and Heidegger, and the fraught relationship of the new generation to their father-figure Sartre. He concludes that Foucault, Derrida, and Deleuze can all be seen as developing their fundamental philosophical stances out of distinctive readings of Nietzsche. The second part of the book considers topics and philosophers that became prominent in the 1980s and 1990s, such as the revival of ethics in Levinas, Derrida, and Foucault, the return to phenomenology and its use to revive religious experience as a philosophical topic, and Alain Badiou's new ontology of the event. Finally Gutting brings to the fore the meta-philosophical theme of the book, that French philosophy since the 1960s has been primarily concerned with thinking the impossible.
Readership: Scholars and advanced students of modern philosophy and the history of European thought.



Vivir la muerte: la muerte y el morir Nuevo esta semana

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Categoría: c) Vejez y Final de la vida
Autor: Vicente Madoz Jáuregui
Edición: Verbo Divino, 2015
ISBN:978-84-9073-121-5
Precio:15€


¿Por qué?, fue la pregunta, sin respuesta, incontestable, testaruda, constantemente reiterada en boca de aquel padre, mientras su mirada acechaba, incrédula, el rostro lívido de su hija, dieciocho años, recién fallecida de forma absurda e imprevista. Su eco, flotando en el ambiente, conmocionó al autor de este libro, hace más de cincuenta años, y alumbró en él su vocación por entender el misterio de la muerte.
Vivir la muerte garantiza saborear la vida. Resulta absurdo soslayarla. Hay que asumirla como parte esencial de la existencia, con sus contrastes, con sus miedos, también, muchas veces, con la sencilla felicidad de lo natural y cotidiano. Es necesario preverla, prepararla y acogerla. También, lograr que su duelo sea humano y enriquecedor.
Es muy probable que leas esta invitación con prejuicios y con temor. Sacúdetelos: este texto te ayudará a ser feliz. Ignorar la muerte empobrece y reduce las ganas de vivir.



Unsafe Abortion and Women's Health Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor:Colin Francome
Edición: Ashgate, 2015
ISBN: 9781472427618
Precio:107,96 Libras


Unsafe abortion remains one of the most neglected sexual and reproductive health problems according to the World Health Organisation. In recent years it has been estimated that over 20 million abortions occur annually leading to around 47,000 deaths. At this rate a woman will die of an unsafe abortion every 11 minutes. Bringing together a wealth of information from around the world, this book argues that the time has come for a great change in legislation, advocating a shift towards the legalization of abortion to improve the health of women in poorer countries. With attention to circumstances in each of the major continental regions, an outline of the global situation is provided to reveal the major trends in the provision and procurement of abortion, as well their effects.

Presenting data drawn from over a hundred countries covering over ninety per cent of the world’s population, based on published statistical information, changes to legal frameworks, court cases and the accounts of local commentators and activists, Unsafe Abortion and Women's Health will be of interest to scholars and students of the sociology of medicine, gender and reproductive health, social and health policy and feminist studies.Contents: Preface; Introduction; Europe; Asia; Africa; Latin America and the Caribbean; Oceania; North America; Conclusions and recommendations; Bibliography; Index.About the Author: Colin Francome is Emeritus Professor of Sociology at Middlesex University, UK. He is the author of Abortion Freedom: A Worldwide Movement, Abortion in the USA and the UK, Sane New World and Karl Marx: Hero or Zero, and co-author of Caesarean Birth in Britain, Improving the Health of the Nation and Abortion: A Worldwide Perspective.Reviews: ‘Colin Francome’s solid, well-researched overview of abortion legislation and realities across the globe offers an invaluable tool for researchers, clinicians, and advocates everywhere committed to advancing reproductive health and justice for all.’
Rosalind Pollack Petchesky, City University of New York, USA



Derechos de la personalidad del menor de edad: su ejercicio en el ámbito sanitario y en las Nuevas Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Aranzau Bartolomé Tutor
Edición: Arazandi, 2015
ISBN: 978-84-9098-185-6
Precio: 54€


A partir de una nueva visión del alcance del ejercicio de los derechos de la personalidad de los menores contenida en el código civil, la obra aporta soluciones prácticas a problemas cotidianos en materia sanitaria, y de las nuevas tecnologías de la información y comunicación.

Los derechos de la personalidad no pueden ser ejercidos por representación. El problema surge cuando el menor tiene que adoptar decisiones relativas a su salud, a su imagen o su derecho de participación. En estos casos, ¿qué papel juegan los menores?¿es el mismo independientemente de su edad? y ¿y cuál es el de los padres?. La obra aporta soluciones jurídicas a estas cuestiones.

En ella se concreta y define un especial y actualizado tratamiento sobre el interés superior del menor, incluyendo la Observación General No. 14 (2013) del Comité de Derechos del Niño de Naciones Unidas, sobre esta cuestión.

En todo el desarrollo del trabajo se tienen en cuenta las novedades legislativas sobre las que trabajan el Proyecto de Ley de Jurisdicción voluntaria, así como los Proyectos de Ley de protección a la infancia y Proyecto de Ley Orgánica complementaria a la Ley de protección a la infancia.



British Ethical Theorists from Sidgwick to Ewing Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Thomas Hurka
Edición: Oxford University Press, 2015
ISBN: 978-0-19-923362-5
Precio: 30 Libras


The first history of this school of moral philosophy
Explores the work of lesser-known writers within the movement alongside their more popular contemporaries
Offers penetrating critical assessments of key arguments in ethics
Illuminates the relevance of historical study to contemporary moral debates
Thomas Hurka presents the first full historical study of an important strand in the development of modern moral philosophy. His subject is a series of British ethical theorists from the late nineteenth century to the mid-twentieth century, who shared key assumptions that made them a unified and distinctive school. The best-known of them are Henry Sidgwick, G. E. Moore, and W. D. Ross; others include Hastings Rashdall, H. A. Prichard, C. D. Broad, and A. C. Ewing. They disagreed on some important topics, especially in normative ethics. Thus some were consequentialists and others deontologists: Sidgwick thought only pleasure is good while others emphasized perfectionist goods such as knowledge, aesthetic appreciation, and virtue. But all were non-naturalists and intuitionists in metaethics, holding that moral judgements can be objectively true, have a distinctive subject-matter, and are known by direct insight. They also had similar views about how ethical theory should proceed and what are relevant arguments in it; their disagreements therefore took place on common ground.
Hurka recovers the history of this under-appreciated group by showing what its members thought, how they influenced each other, and how their ideas changed through time. He also identifies the shared assumptions that made their school unified and distinctive, and assesses their contributions critically, both when they debated each other and when they agreed. One of his themes is that that their general approach to ethics was more fruitful philosophically than many better-known ones of both earlier and later times.
Readership: Scholars and advanced students in history of philosophy and moral philosophy.



Identified versus Statistical Lives: An Interdisciplinary Perspective Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Editores: I. Glenn Cohen, Norman Daniels, Nir Eyal
Edición: Oxford University Press, 2015
ISBN: 978-0190217471
Precio:47,45$


The identified lives effect describes the fact that people demonstrate a stronger inclination to assist persons and groups identified as at high risk of great harm than those who will or already suffer similar harm, but endure unidentified. As a result of this effect, we allocate resources reactively rather than proactively, prioritizing treatment over prevention. For example, during the August 2010 gold mine cave-in in Chile, where ten to twenty million dollars was spent by the Chilean government to rescue the 33 miners trapped underground. Rather than address the many, more cost effective mine safety measures that should have been implemented, the Chilean government and international donors concentrated efforts in large-scale missions that concerned only the specific group. Such bias as illustrated through this incident raises practical and ethical questions that extend to almost every aspect of human life and politics.

What can social and cognitive sciences teach us about the origin and triggers of the effect? Philosophically and ethically, is the effect a "bias" to be eliminated or is it morally justified? What implications does the effect have for health care, law, the environment and other practice domains?
This volume is the first to take an interdisciplinary approach toward answering this issue of identified versus statistical lives by considering a variety of perspectives from psychology, public health, law, ethics, and public policy.



Handbook for Health Care Ethics Committees Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Linda Farber Post, Jeffrey Blustein
Edición: Johns Hopkins University Press, 2012
ISBN: 978-1421416571
Precio:49,95$


The Joint Commission (TJC) accredits and certifies more than 19,000 health care organizations in the United States, including hospitals, nursing homes, and home care agencies. Each organization must have a standing health care ethics committee to maintain its status. These interdisciplinary committees are composed of physicians, nurses, attorneys, ethicists, administrators, and interested citizens. Their main function is to review and provide resolutions for specific, individual patient care problems. Many of these committees are well meaning but may lack the information, experience, skills, and formal background in bioethics needed to adequately negotiate the complex ethical issues that arise in clinical and organizational settings.

Handbook for Health Care Ethics Committees was the first book of its kind to address the myriad responsibilities faced by ethics committees, including education, case consultation, and policy development. Adopting an accessible tone and using a case study format, the authors explore serious issues involving informed consent and refusal, decision making and decisional capacity, truth telling, the end of life, palliative care, justice in and access to health care services, and organizational ethics.

The authors have thoroughly updated the content and expanded their focus in the second edition to include ethics committees in other clinical settings, such as long-term care facilities, small community hospitals, rehabilitation centers, and hospices. They have added three new chapters that address reproduction, disability, and the special needs of the elder population, and they provide additional specialized policies and procedures on the book’s website. This guide is an essential resource for all health care ethics committee members.



Studyguide for Bioethics: Principles, Issues, and Cases by Vaughn, Lewis Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Cram101 Textbook Reviews
Edición: Cram101, 2015
ISBN: 978-1497037014
Precio: 32,95€


Never HIGHLIGHT a Book Again! Includes all testable terms, concepts, persons, places, and events. Cram101 Just the FACTS101 studyguides gives all of the outlines, highlights, and quizzes for your textbook with optional online comprehensive practice tests. Only Cram101 is Textbook Specific. Accompanies: 9780199796236. This item is printed on demand.



The Goldman Guide to Medical Jurisprudence and Medical Ethics Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: David Goldman
Edición: Amazon, 2015
ISBN: ASIN: B00UPGCV8S
Precio: 10,27€


The Goldman Guide to Medical Jurisprudence and Medical Ethics provides a much needed resource for families and students, patients and medical and legal professionals, and everyday laypersons to understand the intersecting world of medicine and law. Dr. David E. Goldman, physician, psychiatrist, and attorney, has taken that which can be so very complex and written it so that it is readily understandable for all.



Responsible Conduct of Research Nuevo esta semana

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Categoría: a) Fundamentación de la bioética
Autor: Adil E. Shamoo, David B. Resnik
Edición: Oxford University Press, 2015
ISBN: 978-0199376025
Precio: 38,17€


Since the early 2000s, the field of Responsible Conduct of Research has become widely recognized as essential to scientific education, investigation, and training. At present, research institutions with public funding are expected to have some minimal training and education in RCR for their graduate students, fellows and trainees. These institutions also are expected to have a system in place for investigating and reporting misconduct in research or violations of regulations in research with human subjects, or in their applications to federal agencies for funding. Public scrutiny of the conduct of scientific researchers remains high. Media reports of misconduct scandals, biased research, violations of human research ethics rules, and moral controversies in research occur on a weekly basis.
Since the 2009 publication of the 2nd edition of Shamoo and Resnik's Responsible Conduct of Research, there has been a vast expansion in the information, knowledge, methods, and diagnosis of problems related to RCR and the multitude of ethical issues of human subject protections. With the climate surrounding research conduct always shifting, developments in the field make an updated edition a necessity. All chapters have been revised and reflect the most current RCR landscape. New or further-developed topics include social responsibility and misconduct in social sciences, climate-change research, authorship, and peer review. Updates include new information on research involving human subjects or "vulnerable" biological subjects, as well as genetic research. Just like in previous editions, all chapters contain recent case studies and legal examples of various subjects.



Philosophical Perspectives on Bioethics

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Categoría: a) Fundamentación de la bioética
Editor: Joseph Boyle, L. Wayne Sumner
Edición: University of Toronto Press, 2015
ISBN: ASIN: B00T9ZI5JK
Precio: 21,42$


How should we attempt to resolve concrete bioethical problems? How are we to understand the role of bioethics in the health care system, government, and academe? This collection of original essays raises these and other questions about the nature of bioethics as a discipline. The contributors to the volume discuss various approaches to bioethical thinking and the political and institutional contexts of bioethics, addressing underlying concerns about the purposes of its practice. Included are extended analyses of such important issues as the conduct of clinical trials, euthanasia, justice in health care, the care of children, cosmetic surgery, and reproductive technologies.



The Science and Ethics of Antipsychotic Use in Children

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Categoría: a) Fundamentación de la bioética
Editor: Nina Di Pietro, Judy Illes
Edición: Academic Press, 2015
ISBN: 978-0128000168
Precio: 59,95$


The Science and Ethics of Antipsychotic Use in Children reviews the latest findings for the safety and efficacy of the rapidly rising incidence of antipsychotic use in children and examines tensions that are created by off-label use, both in clinical psychiatric practice and research. In the past ten years, the number of antipsychotics prescribed to children with psychiatric disorders has skyrocketed. Despite this rapid growth, most medications have been inadequately studied in children for safety or efficacy and many have serious adverse health. Measures are needed to ensure that the health and safety of children are being protected, and debates have emerged over whether or not clinical trials in this population should be conducted.

Offers coverage of efficacy, prevalence, and adverse impacts of the use of antipsychotics in children
Explores ethics challenges of clinical research in this patient population
Serves as a platform for future discussions designed to increase the safety of children taking antipsychotics
Edited work with chapters authored by leading neuroethicists in the field around the globe – the broadest, most expert coverage available



Screening the Single Euploid Embryo: Molecular Genetics in Reproductive Medicine

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Categoría: a) Fundamentación de la bioética
Editor: E Scott Sills
Edición: Springer, 2015
ISBN:978-3319168913
Precio: 199$


Intended for readers with a background in fertility medicine as well as those less familiar with IVF, this comprehensive work presents an update on preimplantation genetic testing to enable single embryo transfer (SET). An international cast of contributors explains the treatment sequence—from ovulation induction to luteal support—aiming to transfer only one euploid embryo. Applications of molecular techniques for gamete and embryo assessment are fully detailed, with a focus on the strengths and limitations of each. In addition, expert commentary is shared across a range of regulatory challenges associated with embryo screening and cryopreservation. As access to advanced reproductive technology increases against a sharper background of healthcare reform, clinicians, economists, bioethicists and legislators alike will find this new volume relevant and highly accessible.



Foundations of Healthcare Ethics: Theory to Practice

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Categoría: a) Fundamentación de la bioética
Autor: John Ozolins, Joanne Grainger
Edición: Cambridge University Press, 2015
ISBN: 978-1107639645
Precio: 89,95€


In order to provide the highest level of care to patients and clients, health professionals need a sound knowledge and understanding of healthcare ethics. Foundations of Healthcare Ethics: theory to practice focuses on the philosophical concepts underpinning contemporary ethical discourse for health professionals, and arms both students and professionals with the knowledge to tackle situations of moral uncertainty in clinical practice. Specially written to provide an in-depth study into the theoretical foundations of healthcare ethics, it covers a range of normative ethical theories, from virtue ethics to utilitarianism, while also investigating their application to contemporary issues in health care and society. It provides opportunities for self-directed learning, and presents questions and case studies to facilitate engagement and discussion. Foundations of Healthcare Ethics provides both students and professionals with an understanding of the philosophy governing healthcare ethics in order to help provide a better level of care to all patients and clients.



The Ethics Police?: The Struggle to Make Human Research Safe

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Categoría: a) Fundamentación de la bioética
Autor: Robert Klitzman
Edición: Oxford University Press, 2015
ISBN: 978-0199364602
Precio: 32,53€


Research on human beings saves countless lives, but has at times harmed the participants. To what degree then should government regulate science, and how? The horrors of Nazi concentration camp experiments and the egregious Tuskegee syphilis study led the US government, in 1974, to establish Research Ethics Committees, known as Institutional Review Boards (IRBs) to oversee research on humans. The US now has over 4,000 IRBs, which examine yearly tens of billions of dollars of research -- all studies on people involving diseases, from cancer to autism, and behavior. Yet ethical violations persist.

At the same time, critics have increasingly attacked these committees for delaying or blocking important studies. Partly, science is changing, and the current system has not kept up. Since the regulations were first conceived 40 years ago, research has burgeoned 30-fold. Studies often now include not a single university, but multiple institutions, and 40 separate IRBs thus need to approve a single project. One committee might approve a study quickly, while others require major changes, altering the scientific design, and making the comparison of data between sites difficult.

Crucial dilemmas thus emerge of whether the current system should be changed, and if so, how. Yet we must first understand the status quo to know how to improve it. Unfortunately, these committees operate behind closed doors, and have received relatively little in-depth investigation. Robert Klitzman thus interviewed 45 IRB leaders and members about how they make decisions. What he heard consistently surprised him.

This book reveals what Klitzman learned, providing rare glimpses into the conflicts and complexities these individuals face, defining science, assessing possible future risks and benefits of studies, and deciding how much to trust researchers -- illuminating, more broadly, how we view and interpret ethics in our lives today, and perceive and use power.



Document sobre bioètica i big data de salut: explotació i comercialització de les dades...

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Categoría: a) Fundamentación de la bioética
Autor: Maria Rosa Llàcer, Maria Casado, Lídia Buisan
Edición: Universitat de Barcelona, 2015
ISBN: 978-84-475-4210-9
Precio: 6,65€


En aquest volum del Grup d'Opinió de l'Observatori de Bioètica i Dret, coordinat per les doctores María Casado, Maria Rosa Llàcer i Lídia Buisan, s'analitzen, des de la perspectiva bioètica, els inconvenients de l'explotació i la comercialització de dades dels usuaris de la sanitat pública arran dels problemes detectats en el projecte VISC+ de la Generalitat de Catalunya, tant en relació amb possibles vulneracions dels drets dels ciutadans com amb la manca de transparència i de debat públic informat en una qüestió de tanta importància com és el tràfic de dades personals. El document posa de manifest que la implementació de les tecnologies Big Data en l'àmbit sanitari, associada a una eventual comercialització d'aquestes dades, impacta directament en el nostre sistema sanitari i investigador i afecta de ple a l'àmbit privat dels ciutadans.



Moral Science Protecting Participants in Human Subjects Research

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Categoría: a) Fundamentación de la bioética
Autor: Presidential Commission for the Study of Bioethical Issues
Edición:Presidential Commission for the Study of Bioethical Issues, 2015
ISBN: 978-1511796538
Precio: 9,99$


The Presidential Commission for the Study of Bioethical Issues today issued its report concerning federally-sponsored research involving human volunteers, concluding that current rules and regulations provide adequate safeguards to mitigate risk. In its report, Moral Science: Protecting Participants in Human Subjects Research, the Commission also recommended 14 changes to current practices to better protect research subjects, and called on the federal government to improve its tracking of research programs supported with taxpayer dollars. President Obama requested that the Commission undertake an assessment of research standards following the October 2010 revelation that the U.S. Public Health Service supported unethical research in Guatemala from 1946 to 1948 that involved intentionally exposing thousands of Guatemalans to sexually transmitted diseases without their consent. The President gave the Bioethics Commission two assignments: to oversee a thorough fact-finding investigation into the specifics of the studies (released September 13, 2011); and to assure that current rules for research participants protect people from harm or unethical treatment, domestically as well as internationally.



Genomics and Society: Ethical, Legal, Cultural and Socioeconomic Implications

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Valoración: 0.00 (0 votos)

Categoría: a) Fundamentación de la bioética
Editor: Dhavendra Kumar, Ruth Chadwick
Edición: Academic Press, 2015
ISBN:978-0124201958
Precio: 89,95$


Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.

The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.

Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.

Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011
Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system
Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more



Fuzziness and Medicine: Philosophical Reflections and Application Systems in Health Care

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Categoría: a) Fundamentación de la bioética
Autor: Rudolf Seising
Edición: Springer, 2015
ISBN:978-3642441059
Precio:179$


This book is a collection of contributions written by philosophers and scientists active in different fields, such as mathematics, logics, social sciences, computer sciences and linguistics. They comment on and discuss various parts of and subjects and propositions introduced in the Handbook of Analytical Philosophy of Medicine from Kadem Sadegh-Zadeh, published by Springer in 2012. This volume reports on the fruitful exchange and debate that arose in the fuzzy community upon the publication of the Handbook. This was not only very much appreciated by the community but also seen as a critical starting point for beginning a new discussion. The results of this discussion, which involved many different perspectives from science and the humanities and was warmly encouraged by Kadem Sadegh-Zadeh himself, are accurately reported in this volume, which is intended to be a critical companion to Kadem Sadegh-Zadeh´s handbook.



Rudolf Seising is currently an adjunct researcher at the European Centre for Soft Computing in Mieres, Asturias (Spain) and a college lecturer at the Faculty of History and Arts, at the Ludwig Maximilians University of Munich (Germany).



Marco Elio Tabacchi is currently the Scientific Director of the Italian National Research & Survey Organization Demopolis, and a research assistant in the Soft Computing Group at University of Palermo (Italy).



From reason to practice in bioethics: An anthology dedicated to the works of John Harris

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Categoría: a) Fundamentación de la bioética
Editores: John Coggon, Sarah Chan, Soren Holme, Thomasine Kushner
Edición: Manchester University Press, 2015
ISBN:978-0719096235
Precio: 105$


No area of practical philosophy receives stronger or more sustained attention than bioethics. It has been established as a staple course on university curricula across the world, influences the practice of professions within and beyond health care, and increasingly features in the public consciousness.

This anthology gathers together original works from some of bioethics' most celebrated scholars. Focused on and around the works of John Harris, the book addresses the most debated issues in contemporary bioethics, and will serve as an excellent text and resource for students, scholars, and practitioners interested in bioethics. It includes chapters from some of the field's most noted scholars, such as Margaret Brazier, Raanan Gillon, Jonathan Glover, Ruth Macklin, as well as John Harris himself. The book offers Professor Harris's own reflections on the field of bioethics, to which he has contributed so much. It then, in two series of eight chapters, examines first theoretical issues in philosophical bioethics, and second practical issues and problems in the application of philosophical argument. The book closes with a chapter where Professor Harris responds critically to the book's contributors.

Whilst challenging, the chapters are accessible to a broad international readership, providing fundamental insights into the nature and limitations of ethical argument.The book will serve as an excellent resource for students, scholars and practitioners interested in bioethics.



Ethically Speaking: Essays and Other Writings On Race, Class and Justice in Health Care and Medicine

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Categoría: a) Fundamentación de la bioética
Autor: Ed.D, Obiora N. Anekwe
Edición: CreateSpace Independent Publishing Platform, 2015
ISBN: 978-1497531215
Precio: 23,67€


Health care injustices of race, class and gender inequality have plagued American medicine for centuries. Few African American bioethicists have critiqued these issues effectively through case study analysis of the Tuskegee Syphilis Study and other related studies. However, Obiora N. Anekwe confronts these ethical challenges upfront without hesitation. He discusses how unethical actions have negatively affected the medical treatment of the most vulnerable. Anekwe not only brings these issues to the forefront, but he also offers tangible solutions to our most pressing ethical challenges. In his most recent book, Ethically Speaking: Essays and Other Writings on Race, Class and Justice in Health Care and Medicine, Anekwe discusses race, class, gender, and other related issues from a multilayered and diverse perspective. He also confronts other relevant ethical issues that continue to plague the universal black race such as global colorism and skin bleaching.



Entre la naturaleza y la cultura. Segunda parte de la serie: Y Darwin tenía razón...

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Categoría: a) Fundamentación de la bioética
Autor: Martínez Picabea de Giorgiutti Elba
Edición: Dunken, 2014
ISBN:978-9870252610
Precio:


Elba Martínez Picabea de Giorgiutti es Doctora en Medicina por la Universidad de Buenos Aires y especialista en Genética Médica y Bioética. Llevó a cabo sus estudios de postgrado en Europa y Estados Unidos. Desarrolló, durante más de cuarenta años, una prolífica actividad en los ámbitos asistenciales, docentes y de investigación básica y clínica. Ocupó cargos en la Universidad de Buenos Aires, en la Universidad de Belgrano, en la Pontificia Universidad Católica Argentina y, por convenio, en otras universidades del país. Fue fundadora y jefe del Servicio de Genética Médica del Hospital Materno Infantil de San Isidro y asesora de numerosas instituciones asistenciales de nuestro país. Creó y dirigió, durante tres décadas, el instituto GENMEDICA, de prestigio internacional, en el que recibieron su formación numerosos especialistas argentinos. Tuvo destacada participación en la Sociedad Argentina de Genética, que la contó entre sus presidentes. Ha sido miembro de numerosas sociedades científicas nacionales e internacionales, como la American Society of Human Genetics, la European Society of Human Genetics, y la Internacional Society of Prenatal Diagnosis, entre otras. Es autora y co-autora de una docena de libros y de alrededor de ciento cincuenta trabajos de investigación. Su permanente interés por temas de bioética y de filosofía de la ciencia la ha llevado a integrar, en la actualidad, el Comité de Ética de la Sociedad Argentina de Investigación Clínica, el Instituto de Bioética de la Academia Nacional de Ciencias Morales y Políticas y la Coordinación de la Comisión Ad-Hoc para la organización de una Comisión de Bioética en el ámbito de la Sociedad Argentina de Genética.En los últimos años, desde su retiro en Merlo en la Provincia de San Luis, se dedica a escribir y publicar sus reflexiones con un lenguaje sencillo que pretende hacer de sus libros textos accesibles al público en general, pero sin descuidar la profundidad y el rigor científico que siempre caracterizaron sus escritos.



New Perspectives in Japanese Bioethics

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Categoría: a) Fundamentación de la bioética
Autor: Alexandra Perry, C. D. Herrera
Edición: Cambridge Scholars Publishing, 2015
ISBN: 978-1443871174
Precio: 71,99$


Post-war Japan has seen profound and rapid social change and transformation. One of the most visible areas of change in Japan has been medicine, and particularly the ethical practices and policies that guide medical decision-making. The formal discipline of bioethics, Seimei Rinri in Japanese, has grown by leaps and bounds since the late 1970s, when it began to appear in the curriculum and professional activities of Japanese medical schools and philosophy departments. The introduction of bioethics to Japan was timely, as innovation in medicine and technology was evolving in ways that revealed that the interSection of medicine, traditional Japanese values, and new cultural trends was an area of great moral complexity. In its infancy, bioethics in Japan was more or less an import from the United States, where the discipline took its roots. Quickly, however, it became clear that Japan's history and tradition would call for a different approach, and the engagement of slightly different ethical issues. Organ transplantation, for example, sparked much greater controversy in Japan than it ever did in the United States. Today, Japan has one of the most dynamic bioethics programs in the world, and it is one that reflects both traditional Japanese culture and the need for inter-cultural engagement in an increasingly global world. Through a series of original chapters written by bioethicists and covering a range of ethical issues, this anthology shows that, in contrast to previous assumptions, Japanese bioethics has, in fact, taken on an identity that is undoubtedly separate from its American origins. Rich philosophical questions raised by medicine, human subjects research, and psychiatric care are being posed by scholars in a way that reflect Japanese tradition and is no longer simply reflective of, or shaped by, American traditions and philosophical problems. The book highlights and showcases these trends through a series of chapters written by some of the leading scholars in contemporary Japanese bioethics, many of whom were pioneers of the field when it began and are now nearing retirement.



Jews and Genes: The Genetic Future in Contemporary Jewish Thought

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Categoría: a) Fundamentación de la bioética
Editor: Rabbi Elliot N. Dorff, Dr. Laurie Zoloth Ph.D.
Edición: The Jewish Publication Society, 2015
ISBN: 978-0827612242
Precio: 27,89$


Well aware of Jews having once been the victims of Nazi eugenics policies, many Jews today have an ambivalent attitude toward new genetics and are understandably wary of genetic forms of identity and intervention. At the same time, the Jewish tradition is strongly committed to medical research designed to prevent or cure diseases. Jews and Genes explores this tension against the backdrop of various important developments in genetics and bioethics—new advances in stem cell research; genetic mapping, identity, testing, and intervention; and the role of religion and ethics in shaping public policy.

Jews and Genes brings together leaders in their fields, from all walks of Judaism, to explore these most timely and intriguing topics—the intricacies of the genetic code and the wonders of life, along with cutting-edge science and the ethical issues it raises.



Dying in the Twenty-First Century: Toward a New Ethical Framework for the Art of Dying Well

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Categoría: a) Fundamentación de la bioética
Autor: Lydia Dugdale
Edición: The MIT Press, 2015
ISBN: 978-0262029124
Precio: 29€


Most of us are generally ill-equipped for dying. Today, we neither see death today nor prepare for it. But this has not always been the case. In the fourteenth century, the Roman Catholic Church published the Ars moriendi texts, which established prayers and practices for an art of dying. In the twenty-first century, physicians rely on procedures and protocols for the efficient management of hospitalized patients. How can we recapture an art of dying that can facilitate our dying well? In this book, physicians, philosophers, and theologians attempt to articulate a bioethical framework for dying well in a secularized, diverse society.

Contributors discuss such topics as the acceptance of human finitude; the role of hospice and palliative medicine; spiritual preparation for death; and the relationship between community, and individual autonomy. They also consider special cases, including children, elderly patients with dementia, and death in the early years of the AIDS epidemic, when doctors could do little more than accompany their patients in humble solidarity.

These chapters make the case for a robust bioethics -- one that could foster both the contemplation of finitude and the cultivation of community that would be necessary for a contemporary art of dying well.

ContributorsJeffrey P. Bishop, Lisa Sowle Cahill, Daniel Callahan, Farr A. Curlin, Lydia S. Dugdale, Michelle Harrington, John Lantos, Stephen R. Latham, M. Therese Lysaught, Autumn Alcott Ridenour, Peter A. Selwyn, Daniel Sulmasy



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