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Inicio : a) Fundamentación de la bioética : 


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Teoría y práctica educativa de los Derechos Humanos Popular

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Categoría: a) Fundamentación de la bioética
Autor: José María Enríquez Sánchez...[et al].
Edición: Tirant Lo Blanch, 2015
ISBN: 9788416062997
Precio: 25€


No solemos prestar suficiente atención a los Derechos Humanos porque, desde nuestro propio bienestar, nos interesa poco como una reflexión que, como esta, pueda incomodarnos. Basta con ver que la apelación más común a estos por parte de la ciudadanía inquietada o conmovida se reduce a reprochar a los agentes de una mal social que podría haberse evitado con solo haber antepuesto ciertas moderaciones y precauciones en lo que pueda afectar al otro. Del lado del experto académico, por lo general emocionalmente comedido, esta atención que la injusticia despierta sobre el tema de los Derechos Humanos se aborda desde áreas disciplinares muy distintas que comportan una necesidad de enseñanza, pero cuya falta de conexión hace difícil su aplicación en el comportamiento cotidiano, ya sea por su excesivo tecnicismo ya por su elevada abstracción. No obstante, si reconocemos en nuestra inquietud la importancia de estos principios como un instrumento real, serio y efectivo, para al prosecución de una verdadera justicia social que pueda ser cimiento de la concordia, resulta conveniente un trabajo interdisciplinar que, como este, intente llevar a cabo una verdadera concreción sobre su exigencia.



Tertulias de Bioética. Manejar la vida, cuidar a las personas. Popular

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Categoría: a) Fundamentación de la bioética
Autor: Juan Masiá clavel, s.j.
Editorial: Sal Terrae. Santander, 2005.
Colección: Presencia Teológica
Encuadernación: Rustica
Peso: 320 Páginas: 272
Medidas: 21 x 13 cm

Precio: 16,00 €


Estas páginas son fruto de unas “tertulias” en las que se han pensado en común cuestiones éticas en torno a la vida. El subtítulo refleja dos retos actuales: manejar la vida haciendo uso de la tecnología, pero con responsabilidad; y tratar las enfermedades, pero cuidando a las personas. Se pretendía en dichas tertulias, continuadas durante más de quince años, dialogar con seriedad científica y mentalidad abierta, teniendo en cuenta las perspectivas cristianas, pero sin excluir otros puntos de vista.

El autor, coordinador de las tertulias, ha reunido aquí materiales misceláneos que puedan servir de referencia en reuniones semejantes a las que originaron, respondiendo a preguntas que están en la calle y en los medios.

Se han clasificado los documentos en torno a los módulos del curso de bioética: introducción antropológica; bioética laica y perspectivas religiosas; comienzo y fin de la vida; salud y enfermedad; ecoética y ecojusticia.

Y para deshacer malentendidos y evitar extremismos, un espacio dedicado a la lectura crítica de las recomendaciones y documentos del magisterio eclesiástico sobre temas de bioética: ¿cómo se conjugan las creencias con el disentimiento razonable y responsable dentro del mismo grupo de quienes las comparten?



Tesis: Una ètica per a la bioètica. H.T. Engelhardt qüestiona les possibilitats de l'ètica civil Popular

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Categoría: a) Fundamentación de la bioética
Carrera J. Una ètica per a la bioètica. Barcelona: Institut Borja de Bioètica, 1999

* Disponible en la biblioteca del Institut Borja de Bioètica y de venda online a través del Institut Borja de Bioètica

Joan Carrera Carrera, s.j., nos presenta esta propuesta de una ética universal, que comparta unos valores mínimos con la esperanza de ampliarlos en un diálogo pacífico. La obra hace un análisis del pensamiento de H.T.Engelhardt confrontándolo con la corriente ética llamada ética civil.

Esta confrontación ya nos está diciendo que el mundo de la ética es un mundo plural, un hecho real pero no obvio para todo el mundo. Joan Carrera hace, pues, un estudio crítico y a fondo del pensamiento de Engelhardt y al mismo tiempo analiza los puntos fuertes y débiles de la Ética Civil -corriente europea de origen diverso que la han patrocinado tanto los filósofos como los teólogos-.

Joan Carrera Carreraes licenciado en Medicina y Cirugía por la Universidad de Barcelona, y de Teología Moral en la Facultad de Teología de Cataluña y en la Universidad Pontificia Gregoriana de Roma.



Tetralogia de la ejemplaridad Popular

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Categoría: a) Fundamentación de la bioética
Autor: Javier Gomà
Edición: Taurus, 2015
ISBN:9788430617043
Precio: 39€


La responsabilidad del ejemplo concierne a todos los hombres por igual, pues vivimos en una red de influencias mutuas de la que no podemos escapar. Pero es indudable que esa responsabilidad pesa especialmente en las personas públicas. Este libro propone la ejemplaridad, igualitaria y secularizada, como principio organizador de la democracia moderna y estudia además la especial ejemplaridad en la que incurren funcionarios, políticos y, en las monarquías parlamentarias, la figura del rey.



Text, Cases and Materials on Medical Law and Ethics Popular

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Categoría: a) Fundamentación de la bioética
Autores: Marc Stauch, Kay Wheat
Edición: Routledge, 2011
ISBN: 978-0-415-58230-8
Precio: 29,91 Libras


Text, Cases & Materials on Medical Law and Ethics presents a valuable collection of materials relating to this topical and increasingly controversial area of the law. Comprising extracts from statutes, cases and scholarly articles alongside expert author commentary and guidance, Medical Law and Ethics signposts students to all the key issues and principles in medical law.

Divided into two parts, the text concentrates on the general principles that permeate medical law before considering the issues which arise in relation to individual areas of medical treatment. Fully revised and updated, this new edition covers ethics more comprehensively, and includes much-enhanced theoretical treatment.

This fourth edition has been fully updated to take account of recent developments in the law, particularly in the areas of assisted reproduction, euthanasia, cloning and stem cell research. For the first time, Medical Law and Ethics also incorporates a number of helpful pedagogic innovations, including bulleted summaries, questions for thought and further reading lists for each chapter, making it an ideal student companion to this popular subject.



Texto refundido de la Ley de garantías y uso racional de los medicamentos y productos sanitarios [RD Popular

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Categoría: a) Fundamentación de la bioética
Autor: Beginbook Ediciones
Edición: Beginbook Ediciones, 2015
ISBN: 9788494427558
Precio: 10,40€


Texto refundido de la Ley de garantías y uso racional de los medicamentos y productos sanitarios
[RDL 24 julio 2015]



Textos clave de la ética Popular

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Categoría: a) Fundamentación de la bioética
Autor: Norbert Bilbeny García
Edición: Tecnos, 2012
I.S.B.N.: 978-84-309-5469-8
Precio : 38,50 €


Desde los sofistas hasta Habermas y Foucault, este libro recoge los textos clave de casi una cincuentena de pensadores de la Ética. Expone, pues, la filosofía moral a través de sus principales textos, y como una forma de historia, con la presentación de sus autores esenciales. Aristóteles y su concepto de la «felicidad», Kant y la «buena voluntad», o Nietzsche y su «genealogía» de los conceptos morales, éstos y tantos otros pensadores —no sólo filósofos: Darwin, Marx y Freud se recogen también en la obra—, nos han legado el vocabulario y las perspectivas de interpretación que en gran medida sirven aún hoy para el debate ético y el estudio del fenómeno moral.
Junto con los textos se acompaña biografía y bibliografía de cada autor, un resumen de su pensamiento ético y de su propio léxico, cuestiones acerca del texto, y otras fuentes de la historia de la ética con las que éste guarda relación. De modo que el lector dispone de un conjunto articulado de referencias que le permite una visión global y a la vez detallada del suceder de las grandes teorías éticas. Por ello este libro es de especial utilidad para profesores y estudiantes, pero también para los profesionales en que la ética forma parte de sus intereses: sanidad, derecho, medio ambiente, comunicación, ciencia y tecnología.

Descontado su aporte documental y crítico, se podrá comprobar de paso que la historia de la ética no es un patrimonio muerto, sino un relato apasionante, por su engarce con el conocimiento, los avatares de cultura y la experiencia misma de la vida. Así, a veces los autores o los conceptos más antiguos parecen los más próximos a nuestra experiencia actual.



The Accession of the European Union to the European Convention on Human Rights Popular

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Categoría: a) Fundamentación de la bioética
Autor: Paul Gragl
Edición: Hart Publishing, 2014
ISBN:9781849464604
Precio: 40L


After more than 30 years of discussion, negotiations between the Council of Europe and the European Union on the EU's accession to the European Convention on Human Rights have resulted in a Draft Accession Agreement. This will allow the EU to accede to the Convention within the next couple of years. As a consequence, the Union will become subject to the external judicial supervision of an international treaty regime. Individuals will also be entitled to submit applications against the Union, alleging that their fundamental rights have been violated by legal acts rooted in EU law, directly to the Strasbourg Court.

As the first comprehensive monograph on this topic, this book examines the concerns for the EU's legal system in relation to accession and the question of whether and how accession and the system of human rights protection under the Convention can be effectively reconciled with the autonomy of EU law. It also takes into account how this objective can be attained without jeopardising the current system of individual human rights protection under the Convention. The main chapters deal with the legal status and rank of the Convention and the Accession Agreement within Union law after accession; the external review of EU law by Strasbourg and the potential subordination of the Luxembourg Court; the future of individual applications and the so-called co-respondent mechanism; the legal arrangement of inter-party cases after accession and the presumable clash of jurisdictions between Strasbourg and Luxembourg; and the interplay between the Convention's subsidiarity principle (the exhaustion of local remedies) and the prior involvement of the Luxembourg Court in EU-related cases.



The accession of the European Union to the European Convention on Human Rights (2014) Popular

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Categoría: a) Fundamentación de la bioética
Autor:Johan Callewaert
Edición: Council of Europe, 2014
ISBN: 978-92-871-7852-7
Precio: 15€


Provided for under the Treaty of Lisbon, the accession of the European Union to the European Convention on Human Rights is destined to be a landmark in European legal history because it will finally make it possible for individuals and undertakings to apply to the European Court of Human Rights for review of the acts of European Union institutions, which unquestionably play an increasingly important role in our daily lives. After nearly three years of negotiations, a draft agreement on European Union accession was adopted on 5 April 2013. In the light of the draft agreement, this publication offers a concise analysis of the reasons for European Union accession to the Convention, the means by which this is to be achieved and the effects it will have.



The Ageless Generation: How Advances in Biomedicine Will Transform the Global Economy Popular

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Categoría: a) Fundamentación de la bioética
Autor: Alex Zhavoronkov
Edición: Palgrave Macmillan, 2013
ISBN: 978-0230342200
Precio: 18,53$


Over the past 20 years, the biomedical research community has been delivering hundreds of breakthroughs expected to extend human lifespan beyond thresholds imaginable today. However, much of this research has not yet been adopted into clinical practice, nor has it been widely publicized. Biomedicine will transform our society forever by allowing people to live longer and to continue working and contributing financially to the economy longer, rather than entering into retirement and draining the economy through pensions and senior healthcare. Old age will become a concept of the past, breakthroughs in regenerative medicine will continue, and an unprecedented boom to the global economy, with an influx of older able-bodied workers and consumers, will be a reality. A leading expert in aging research, author Alex Zhavoronkov provides a helicopter view on the progress science has already made, from repairing tissue damage to growing functional organs from a single cell, and illuminates the possibilities that the scientific and medical community will soon make into realities. The Ageless Generation is an engaging work that causes us to rethink our ideas of age and ability in the modern world.



The American Experience in Bioethics Popular

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Categoría: a) Fundamentación de la bioética
Autor: Lisa Newton
Edición: Springer, 2014
ISBN:
Precio: 42,50€


This volume tracks the development in the United States of the field of Bioethics, Ethics applied to the disciplines of medicine, nursing, and health care in general, including medical research and the complex economic and political problems surrounding the provision of medical and nursing care. It explains how the United States developed, case by case, the central rules and principles of ER ethics in the Health Care System. The discussion includes the controversies centering on birth, death, clinical research, experimental procedures (cloning, reproductive technology, organ transplants), and ends with a substantial suggestion on the provision of health care for all.



The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life Popular

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Categoría: a) Fundamentación de la bioética
Autor: Ira Byock
Edición: Avery, 2012
ISBN:978-158333459
Precio: 15,11 €


A palliative care doctor on the front lines of hospital care illuminates one of the most important and controversial ethical issues of our time on his quest to transform care through the end of life.

It is harder to die in this country than ever before. Statistics show that the vast majority of Americans would prefer to die at home, yet many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to "fight disease and illness at all cost."

Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that end-of-life care is among the biggest national crises facing us today. In addressing the crisis, politics has trumped reason. Dr. Byock explains that to ensure the best possible care for those we love-and eventually ourselves- we must not only remake our healthcare system, we must also move past our cultural aversion to talking about death and acknowledge the fact of mortality once and for all.

Dr. Byock describes what palliative care really is, and-with a doctor's compassion and insight-puts a human face on the issues by telling richly moving, heart-wrenching, and uplifting stories of real people during the most difficult moments in their lives. Byock takes us inside his busy, cutting-edge academic medical center to show what the best care at the end of life can look like and how doctors and nurses can profoundly shape the way families experience loss.

Like books by Atul Gawande and Jerome Groopman, The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning, life or death medical drama. It is passionate and timely, and it has the power to lead a new kind of national conversation.



The Bioethics of Pain Management: Beyond Opioids Popular

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Categoría: a) Fundamentación de la bioética
Autor: Daniel S. Goldberg
Edición: Routledge, 2013
ISBN:978-0415746731
Precio: 115,49$


In this book, public health ethicist Daniel S. Goldberg sets out to characterize the subjective experience of pain and its undertreatment within the US medical establishment, and puts forward public policy recommendations for ameliorating the undertreatment of pain. The book begins from the position that the overwhelming focus on opioid analgesics as a means for improving the undertreatment of pain is flawed, and argues instead that dominant Western models of biomedicine and objectivity delegitimize subjective knowledge of the body and pain in the US. This general intolerance for the subjectivity of pain is part of a specific American culture of pain in which a variety of actors take part, including not only physicians and health care providers, but also pain sufferers, caregivers, and policymakers. Concentrating primarily on bioethics, history, and public policy, the book brings a truly interdisciplinary approach to an urgent practical ethical problem. Taking up the practical challenge, the book culminates in a series of policy recommendations that provide pathways for moral agents to move beyond contests over drug policy to policy arenas that, based on the evidence, hold more promise in their capacity to address the devastating and inequitable undertreatment of pain in the US.



The Biological Foundations of Bioethics Popular

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Categoría: a) Fundamentación de la bioética
Editor: Tim Lewens
Edición: Oxford University Press, 2015
ISBN: 9780198712657
Precio: 49,50$


Much recent thought on the ethics of new biomedical technologies, and work in ethics and political philosophy more generally, is committed to hidden and contestable views about the nature of biological reality. This selection of essays by Tim Lewens, a leading expert in the field, teases out these biological foundations of bioethical writing and subjects them to scrutiny. The topics covered include human enhancement, the risks of technical progress, the alleged moral threat of synthetic biology, the reality of human nature, the relevance of evolutionary psychology to social policy, the nature of the distinction between health and disease, and justice in healthcare decision-making.



The Biopolitics of Lifestyle: Foucault, Ethics and Healthy Choices Popular

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Categoría: a) Fundamentación de la bioética
Autor: Christopher Mayes
Edición: Routledge, 2015
ISBN: 978-1138933866
Precio: 145$


A growing sense of urgency over obesity at the national and international level has led to a proliferation of medical and non-medical interventions into the daily lives of individuals and populations. This work focuses on the biopolitical use of lifestyle to govern individual choice and secure population health from the threat of obesity. The characterization of obesity as a threat to society caused by the cumulative effect of individual lifestyles has led to the politicization of daily choices, habits and practices as potential threats. This book critically examines these unquestioned assumptions about obesity and lifestyle, and their relation to wider debates surrounding neoliberal governmentality, biopolitical regulation of populations, discipline of bodies, and the possibility of community resistance.

The rationale for this book follows Michel Foucault’s approach of problematization, addressing the way lifestyle is problematized as a biopolitical domain in neoliberal societies. Mayes argues that in response to the threat of obesity, lifestyle has emerged as a network of disparate knowledges, relations and practices through which individuals are governed toward the security of the population’s health. Although a central focus is government health campaigns, this volume demonstrates that the network of lifestyle emanates from a variety of overlapping domains and disciplines, including public health, clinical medicine, media, entertainment, school programs, advertising, sociology and ethics.

This book offers a timely critique of the continued interventions into the lives of individuals and communities by government agencies, private industries, medical and non-medical experts in the name of health and population security and will be of interests to students and scholars of critical international relations theory, health and bioethics and governmentality studies.



The Birth of Bioethics Popular

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Categoría: a) Fundamentación de la bioética
Autor: Albert R. Jonsen
Edición: Oxford University Press, 2003
ISBN:978-0195171471
Precio: 37,88$


A broad history of the growing field of bioethics. Covering the period 1947-1987, it examines the origin and evolution of the debates over human experimentation, genetic engineering, organ transplantation, termination of life-sustaining treatment and new reproductive technologies. It assesses the contributions of philosophy, theology, law and the social sciences to the expanding discourse of bioethics. Written by one of the field's founders, it is based on extensive archival research into resources that are difficult to obtain and on interviews with many leading figures. A readable account of the development of bioethics, the book stresses the history of ideas but does not neglect the social and cultural context and the people involved.



The Blue Man and Other Stories of the Skin Popular

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Categoría: a) Fundamentación de la bioética
Autor: Robert A. Norman
Edición: University Of California Press, 2014
ISBN: 9780520272866
Precio: 27,95€


Written by a leading dermatologist, The Blue Man and Other Stories of the Skin provides a compelling and accessible introduction to the life of our largest organ, while also recounting the author’s experiences with memorable patients he has treated who suffer from mysterious skin conditions. Robert Norman begins by highlighting the qualities of the skin, tracing the history of its conditions and diseases, then examining the cultural, social and psychological impact of both color and irregularity. The book also features an absorbing collection of stories about some of his most intriguing patients: from a man whose skin mysteriously turned blue, to a hypochondriacal woman who begins to show signs of a life-threatening disease. This is a fascinating account of the dynamic nature of the skin, and the people who inhabit it.



The Cambridge dictionary of Philosophy Popular

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Categoría: a) Fundamentación de la bioética
Autor: Robert Audi
Edición: Cambridge University Press, 2015
ISBN: 9781107643796
Precio:44,65€


This is the leading, full-scale comprehensive dictionary of philosophical terms and thinkers to appear in English in more than half a century. Written by a team of more than 550 experts and now widely translated, it contains approximately 5,000 entries ranging from short definitions to longer articles. It is designed to facilitate the understanding of philosophy at all levels and in all fields. Key features of this third edition include: * 500 new entries covering Eastern as well as Western philosophy, and covering individual countries such as China, France, Germany, Italy, and Spain * Increased coverage of such growing fields as ethics and philosophy of mind * More than 100 new intellectual portraits of leading contemporary thinkers * Wider coverage of Continental philosophy * Dozens of new technical concepts in cognitive science and other areas * Enhanced cross-referencing to add context and increase understanding * Expansions in both text and index to facilitate research and browsing.



The Cambridge Handbook of Human Dignity Interdisciplinary Perspectives Popular

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Categoría: a) Fundamentación de la bioética
Editores: Marcus Düwell, Jens Braarvig, Roger BrownswordDietmar Mieth
Edición: Cambridge University Press, 2014
ISBN:9780521195782
Precio:125$


This introduction to human dignity explores the history of the notion from antiquity to the nineteenth century, and the way in which dignity is conceptualised in non-Western contexts. Building on this, it addresses a range of systematic conceptualisations, considers the theoretical and legal conditions for human dignity as a useful notion and analyses a number of philosophical and conceptual approaches to dignity. Finally, the book introduces current debates, paying particular attention to the legal implementation, human rights, justice and conflicts, medicine and bioethics, and provides an explicit systematic framework for discussing human dignity. Adopting a wide range of perspectives and taking into account numerous cultures and contexts, this handbook is a valuable resource for students, scholars and professionals working in philosophy, law, history and theology.



The Cambridge Textbook of Bioethics Popular

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Categoría: a) Fundamentación de la bioética
Editor: Peter A. Singer, A. M. Viens
Edición: Cambridge University Press, 2008
ISBN: 978-0521694438
Precio: 77,21 $


Medicine and health care generate many bioethical problems and dilemmas that are of great academic, professional and public interest. This comprehensive resource is designed as a succinct yet authoritative text and reference for clinicians, bioethicists, and advanced students seeking a better understanding of ethics problems in the clinical setting. Each chapter illustrates an ethical problem that might be encountered in everyday practice; defines the concepts at issue; examines their implications from the perspectives of ethics, law and policy; and then provides a practical resolution. There are 10 key sections presenting the most vital topics and clinically relevant areas of modern bioethics. International, interdisciplinary authorship and cross-cultural orientation ensure suitability for a worldwide audience. This book will assist all clinicians in making well-reasoned and defensible decisions by developing their awareness of ethical considerations and teaching the analytical skills to deal with them effectively.



The Care of Life: Transdisciplinary Perspectives in Bioethics and Biopolitics Popular

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Categoría: a) Fundamentación de la bioética
Editor: Miguel de Beistegui, Giuseppe Bianco, Marjorie Gracieuse
Edición: Rowman & Littlefield International, 2014
ISBN: 9781783480371
Precio: 115$


This interdisciplinary collection of essays demonstrates how the ethical and political problems we are confronted with today have come to focus largely on life. The contributors to this volume define and assess the specific meaning of life itself. It is only by doing so that we can understand why life has become an all-encompassing problem, why all questions, especially ethical and political, have become vital questions. We have reached a moment in history where every distinction and opposition is no longer in relation to life, but within it, and where life is at once a theoretical and practical problem. This book throws light on this nexus of problems at the heart of contemporary debates in bioethics and biopolitics. It helps us understand why and how life is understood, valued, cared for and framed today. Taking a genuinely transdisciplinary approach, these essays demonstrate how life is a multifaceted problem and how diverse the origins, foundations and also consequences of bioethics and biopolitics therefore are.



The Case against Perfection: Ethics in the Age of Genetic Engineering Popular

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Categoría: a) Fundamentación de la bioética
Autor: Michael J. Sandel
Edición:Belknap Press, 2009
ISBN: 978-0674036383
Precio: 16€


Listen to a short interview with Michael Sandel Host: Chris Gondek | Producer: Heron & Crane

Breakthroughs in genetics present us with a promise and a predicament. The promise is that we will soon be able to treat and prevent a host of debilitating diseases. The predicament is that our newfound genetic knowledge may enable us to manipulate our nature--to enhance our genetic traits and those of our children. Although most people find at least some forms of genetic engineering disquieting, it is not easy to articulate why. What is wrong with re-engineering our nature?

The Case against Perfection explores these and other moral quandaries connected with the quest to perfect ourselves and our children. Michael Sandel argues that the pursuit of perfection is flawed for reasons that go beyond safety and fairness. The drive to enhance human nature through genetic technologies is objectionable because it represents a bid for mastery and dominion that fails to appreciate the gifted character of human powers and achievements. Carrying us beyond familiar terms of political discourse, this book contends that the genetic revolution will change the way philosophers discuss ethics and will force spiritual questions back onto the political agenda.

In order to grapple with the ethics of enhancement, we need to confront questions largely lost from view in the modern world. Since these questions verge on theology, modern philosophers and political theorists tend to shrink from them. But our new powers of biotechnology make these questions unavoidable. Addressing them is the task of this book, by one of America's preeminent moral and political thinkers.



The Censor's Hand: The Misregulation of Human-Subject Research Popular

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Categoría: a) Fundamentación de la bioética
Autor: Carl E. Schneider
Edición: The MIT Press, 2015
ISBN: 978-0262028912
Precio: 35$


Medical and social progress depend on research with human subjects. When that research is done in institutions getting federal money, it is regulated (often minutely) by federally required and supervised bureaucracies called "institutional review boards" (IRBs). Do -- can -- these IRBs do more harm than good? In The Censor's Hand, Schneider addresses this crucial but long-unasked question.

Schneider answers the question by consulting a critical but ignored experience -- the law's learning about regulation -- and by amassing empirical evidence that is scattered around many literatures. He concludes that IRBs were fundamentally misconceived. Their usefulness to human subjects is doubtful, but they clearly delay, distort, and deter research that can save people's lives, soothe their suffering, and enhance their welfare. IRBs demonstrably make decisions poorly. They cannot be expected to make decisions well, for they lack the expertise, ethical principles, legal rules, effective procedures, and accountability essential to good regulation. And IRBs are censors in the place censorship is most damaging -- universities.

In sum, Schneider argues that IRBs are bad regulation that inescapably do more harm than good. They were an irreparable mistake that should be abandoned so that research can be conducted properly and regulated sensibly.



The Changing Moral Focus of Newborn Screening Popular

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Categoría: a) Fundamentación de la bioética
Autor: The President's Council on Bioethics
Edición: CreateSpace Independent Publishing Platform, 2015
ISBN: 978-1508942306
Precio:14$


Newborn screening in the United States today is a complex public health endeavor that touches the lives of nearly every one of the four million babies born in the country each year. In this chapter we offer an account of the basic features of newborn screening as it is practiced in the United States. We first trace the origins and describe the current practice of newborn screening, noting some of the challenging aspects of it that raise ethical questions. Then, we briefly describe the state and federal policies pertaining to the practice of newborn



The concept of injustice Popular

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Categoría: a) Fundamentación de la bioética
Autor: Eric Heinze
Edición: Routledge, 2014
ISBN:9780415634793
Precio: 38,55€


This book insists upon a re-thinking of Western theories of Justice. For 2500 years, philosophers have subordinated the concept of injustice to the concept of justice, as if injustice were only a secondary, derivative notion. This book summons literary classics, notably Shakespeare, to argue that injustice, not justice, should be the focus of our attention. A long line of thinkers, from Plato and Aristotle through to Kant, Hegel, Marx and Rawls, have overlooked the central problems of injustice. The book identifies two elements - unity and measurement - that are constantly assumed to be essential to justice. It shows how, in landmark literary classics, it is precisely those two elements that end up generating injustice. Western justice theory, it is concluded, cannot advance until it takes a new approach to the concept and the realities of injustice.



The Contingent Nature of Life: Bioethics and the Limits of Human Existence Popular

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Categoría: a) Fundamentación de la bioética
Autor: Marcus Düwell, Christoph Rehmann-Sutter, Dietmar Mieth
Edición: Springer, 2008
ISBN:978-1402067624
Precio: 255,55$


Life and nature are imperfect, uncontrollable, largely (and perhaps permanently) unknowable, that is to say: contingent. The contingency of life is a significant challenge for medicine and technology. Life sciences seem to broaden the possibilities of control to an extent that the contingency of life and nature is no longer self-evident. This very broad diagnosis raises a lot of serious questions. Is it a valid diagnosis? Are the life sciences really defying the contingency of our existence? Or we only manipulated with utopian promises? And if contingency is really being challenged, why should we worry about it? Is contingency essential for a meaningful life and way of life? This volume explores the different dimensions of how the contingency of life, and especially human life, is relevant for ethical discussions and the normative frameworks in bioethics. It explores the relevance of the notion contingency, needs and desires for moral argumentation and bioethics. The volume discusses those notions in a philosophical perspective, but pays special attention to the impact of life sciences for people with disabilities and intercultural perspectives on the bioethical debates. Additionally, the volume is a contribution to a deeper reflection on basic philosophical assumptions of bioethics.



The Conversation: A Revolutionary Plan for End-of-Life Care Popular

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Categoría: a) Fundamentación de la bioética
Autor: Angelo Volandes
Edición: Bloomsbury USA, 2015
ISBN: 978-1620408544
Precio: 19,26€


There is an unspoken dark side of American medicine-keeping patients alive at any price. Two thirds of Americans die in healthcare institutions tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones.




Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care.



The Cost Disease: Why Computers Get Cheaper and Health Care Doesn't Popular

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Categoría: a) Fundamentación de la bioética
Autor: William J. Baumol, David de Ferranti, Monte Malach, Ariel Pablos-Mendez, Hilary Tabish, Lilian Gomory Wu
Edición:Yale University Press, 2012
ISBN:978-0300179286
Precio:18,32€


The exploding cost of health care in the United States is a source of widespread alarm. Similarly, the upward spiral of college tuition fees is cause for serious concern. In this concise and illuminating book, the well-known economist William J. Baumol explores the causes of these seemingly intractable problems and offers a surprisingly simple explanation. Baumol identifies the "cost disease" as a major source of rapidly rising costs in service sectors of the economy. Once we understand that disease, he explains, effective responses become apparent.

Baumol presents his analysis with characteristic clarity, tracing the fast-rising prices of health care and education in the United States and other major industrial nations, then examining the underlying causes, which have to do with the nature of providing labor-intensive services. The news is good, Baumol reassures us, because the nature of the disease is such that society will be able to afford the rising costs.



The Creative Destruction of Medicine: How the Digital Revolution Will Create Better Health Care Popular

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Categoría: a) Fundamentación de la bioética
Autor:Eric Topol
Edición: Basic Books, 2013
ISBN:978-0465061839
Precio: 13,28$


Mobile technology has transformed our lives, and personal genomics is revolutionizing biology. But despite the availability of technologies that can provide wireless, personalized health care at lower cost, the medical community has resisted change. In The Creative Destruction of Medicine, Eric Topol—one of the nation’s top physicians—calls for consumer activism to demand innovation and the democratization of medical care. The Creative Destruction of Medicine is the definitive account of the coming disruption of medicine, written by the field’s leading voice.



The Cunning of Uncertainty Popular

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Categoría: a) Fundamentación de la bioética
Autor: Helga Nowotny
Edición: Wiley, 2015
ISBN: 978-0-7456-8761-2
Precio: 22,01€


Uncertainty is interwoven into human existence. It is a powerful incentive in the search for knowledge and an inherent component of scientific research. We have developed many ways of coping with uncertainty. We make promises, manage risks and make predictions to try to clear the mists and predict ahead. But the future is inherently uncertain - and the mist that shrouds our path an inherent part of our journey. The burning question is whether our societies can face up to uncertainty, learn to embrace it and whether we can open up to a constantly evolving future.

In this new book, Helga Nowotny shows how research can thrive at the cusp of uncertainty. Science, she argues, can eventually transform uncertainty into certainty, but into certainty which remains always provisional.

Uncertainty is never completely static. It is constantly evolving. It encompasses geological time scales and, at the level of human experience, split-second changes as cells divide. Life and death decisions are taken in the blink of the eye, while human interactions with the natural environment may reveal their impact over millennia.

Uncertainty is cunning. It appears at unexpected moments, it shuns the straight line, takes the oblique route and sometimes the unexpected short-cut. As we acknowledge the cunning of uncertainty, its threats retreat. We accept that any scientific inquiry must produce results that are provisional and uncertain. This message is vital for politicians and policy-makers: do not be tempted by small, short-term, controllable gains to the exclusion of uncertain, high-gain opportunities.





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