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Artículos

Genética : A framework for enhancing ethical genomic research with Indigenous communities.
Enviado por Biblio on 9/8/2018 7:03:00 (18 Lecturas)

Claw KG, Anderson MZ, Begay RL, Tsosie KS, Fox K, Garrison NA; Summer internship for INdigenous peoples in Genomics (SING) Consortium. A framework for enhancing ethical genomic research with Indigenous communities. Nat Commun. 2018 Jul 27;9(1):2957. doi: 10.1038/s41467-018-05188-3.

Disponible a: https://www.ncbi.nlm.nih.gov/pubmed/30054469

Abstract

Integration of genomic technology into healthcare settings establishes new capabilities to predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples remain starkly underrepresented in genetic and clinical health research and are unlikely to benefit from such efforts. To foster collaboration with Indigenous communities, we propose six principles for ethical engagement in genomic research: understand existing regulations, foster collaboration, build cultural competency, improve research transparency, support capacity building, and disseminate research findings. Inclusion of underrepresented communities in genomic research has the potential to expand our understanding of genomic influences on health and improve clinical approaches for all populations.

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Bioètica i Debat Ediciones SL