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Enviado por Biblio on 27/4/2015 16:00:16 (10 Lecturas)

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By Kaitlyn Schaeffer

Brittany Maynard, a twenty nine-year-old woman diagnosed with terminal brain cancer, opted to end her life last year; in doing so, she became the new face of the assisted suicide movement. Following her diagnosis, Maynard and her husband moved from California to Oregon so that she would be able to take advantage of Oregon’s Death with Dignity legislation. Prior to her death, Maynard recorded a video urging California to adopt assisted suicide legislation:

“Making aid in dying a crime creates undue hardships and suffering for many people who are terminally ill and suffering tremendously,” she intoned on the recording. “It limits our options and deprives us of our ability to control how much pain and agony we endure before we pass.”

The message proved persuasive – after viewing the video, California’s Senate Health Committee approved an End-of-Life Option Act (SB 128) in a 6 to 2 vote. The bill will now be debated by the entire Senate.


Enviado por Biblio on 24/4/2015 9:26:49 (29 Lecturas)

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Two years of Neuroscience Inquiry at the Bioethics Commission
Written by Alannah Kittle on April 2, 2015 — Leave a Comment
GM1and2

On March 26, 2015, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released Gray Matters: Topics at the Intersection of Neuroscience, Ethics, and Society (Gray Matters, Vol. 2), the second of its two-volume response to President Obama’s charge to examine the ethical implications of neuroscience research and its applications.


Enviado por Biblio on 23/4/2015 10:34:58 (35 Lecturas)

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Richard M. Schwartzstein, M.D.
N Engl J Med 2015; 372:1586-1587April 23, 2015DOI: 10.1056/NEJMp1501440

The video shows a fourth-year medical student interviewing a patient. The student is a bit awkward and is using technical terms and inappropriate body language. A leading medical educator asks, “How did we let this student into medical school?” “Wherever I travel,” he continues, “I hear from public officials that doctors demonstrate little empathy and don't communicate well with patients. We have to fix the problem. We have to screen for more humanistic students in our admissions processes.”


Enviado por Biblio on 22/4/2015 9:47:18 (33 Lecturas)

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Nuala Kenny discusses the Supreme Court of Canada’s decision to remove the prohibition on assisted suicide.

In a long-awaited decision for many, the Supreme Court of Canada has removed the Criminal Code prohibition on assisted suicide based on a Charter of Rights and Freedoms challenge. This decision was inevitable, but is one that I receive with great sadness. While physician assisted suicide is heralded as humane and compassionate care, in my view, it is an instance of technology triumphing over alternative standards of care for persons who are suffering and dying.


Enviado por Biblio on 21/4/2015 10:20:44 (38 Lecturas)

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Roberto Cañete, Kenneth W Goodman

For more than a half century, official relations between Cuba and the USA have been tense, fraught, and shaped by a mistrust which has not served the interests of ordinary Cubans or Americans. Despite official policies, some of those ordinary citizens—scholars, scientists, artists, and others—have forged ties based on mutual goals and objectives.

One good example consists in apolitical efforts by the two countries' bioethics communities, elements of which have hosted conferences, scholarly visits, and curriculum development projects. Topics have ranged from brain death to public health. For instance, the University of Miami Bioethics Program, the Research Ethics Committee of the Centre of Hygiene, Epidemiology and Microbiology in Matanzas City, and others have developed a curriculum in ethics and public health,1 an anticipation of the idea that population-based health could “lead the way” in the thawing of relations.2, 3


Enviado por Biblio on 20/4/2015 10:05:56 (38 Lecturas)

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TUIJA TAKALA and MATTI HÄYRY (2015). Guest Editorial. Cambridge Quarterly of Healthcare Ethics, 24, pp 135-137. doi:10.1017/S0963180114000437.


Enviado por Biblio on 17/4/2015 9:48:51 (52 Lecturas)

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L’accés dels metges inspectors de l’ICAM a la història clínica ha de ser excepcional i amb prèvia autorització del pacient

En relació al nostre posicionament ètic en contra de l’entrada dels metges inspectors de l’ICAM a la historia clínica dels pacients en situació d’incapacitat temporal.


Enviado por Biblio on 16/4/2015 10:25:14 (99 Lecturas)

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Bioethics Commission Releases Final Neuroscience Report as Part of BRAIN Initiative: Focuses on Controversial Topics that Must be Addressed if Neuroscience is to Progress and be Applied Ethically



Written by Misti Ault Anderson on March 26, 2015

The Presidential Commission for the Study of Bioethical Issues today released Gray Matters: Topics at the Intersection of Neuroscience, Ethics, and Society (Gray Matters, Vol. 2), the second of its two volume report in response to President Obama’s BRAIN Initiative related charge. The President requested that the Bioethics Commission consider the ethical issues associated with neuroscience research and the application and implications of neuroscience research findings. Gray Matters, Vol. 2takes an in-depth look at three controversial topics at the intersection of neuroscience and society that have captured the public’s attention—cognitive enhancement, consent capacity, and neuroscience within the legal system. In the first volume, Gray Matters: Integrative Approaches for Neuroscience, Ethics, and Society, released in May 2014, the Bioethics Commission emphasized the importance of integrating ethics and neuroscience early and explicitly throughout the research endeavor. Programs that integrate neuroscience and ethics will be well-positioned to answer new and remaining ethical questions, consider societal implications of neuroscience research, educate the public, and implement policy recommendations. The three topics addressed in Gray Matters, Vol. 2 illustrate the ethical tensions and societal implications of advancing neuroscience and technology, and bring into heightened relief many important ethical considerations.


Enviado por Biblio on 15/4/2015 16:00:02 (72 Lecturas)

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By Martin Enserink 14 April 2015

The movement to ensure that clinical trial results don't end up in drawers has found an important global ally. Today, the World Health Organization (WHO) issued a call to make results from every clinical study publicly available within a year. Not doing so can harm patients and research subjects, waste time and money, and hold back medical science, WHO says.


Enviado por Biblio on 14/4/2015 9:42:09 (75 Lecturas)

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La defensa del paciente como persona y no como elemento o instrumento, sobre el que o con el que actuar, es objeto de atención de este comentario en el que el autor pone en igualdad dignidad del paciente y dignidad del profesional

El paciente como ser humano autónomo

La dignidad del paciente se explica por su valor como ser racional que tiene libertad para escoger entre alternativas vitales.

Ciertamente, la libertad del paciente se ve recortada en mucho pues el enfermar implica justo la limitación y el desvalimiento. Por ello es más importante que nunca que el ser humano doliente sea tratado con dignidad; es decir, sea respetado en la toma de decisiones y en el ejercicio de su libertad.

La autonomía es un valor ético, un principio básico de la bioética, pero limitado por el de justicia, especialmente en su aspecto de equidad. Por ello la dignidad del paciente es exigible con mayor intensidad cuanto más frágil sea el paciente, puesto que su autonomía se debilita y el profesional debería suplir este fallo a que lleva inevitablemente la enfermedad.

La equidad tiene un componente vertical, en el sentido de dar más a quien más precisa. La equidad tiene también un componente horizontal, en el sentido de dar igual a quienes tienen la misma necesidad. En ese sentido, la dignidad en el trato al paciente conlleva el respeto a la autonomía del paciente, pero con oferta proporcional de servicios según sea la necesidad del enfermo.


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