Patient-Centered Obstetric Care in the Age of Cell-Free Fetal DNA Prenatal Scree

Fecha 12/4/2018 7:05:00 | Categoría: Inicio de la vida

Agatisa PK, Mercer MB, Mitchum A, Coleridge MB, Farrell RM. Patient-Centered Obstetric Care in the Age of Cell-Free Fetal DNA Prenatal Screening. J Patient Exp. 2018 Mar;5(1):26-33. doi: 10.1177/2374373517720482. Epub 2017 Aug 30.

Disponible: https://www.ncbi.nlm.nih.gov/pubmed/29582008
Abstract

PURPOSE:
The clinical introduction of innovative prenatal genetic technologies challenges patients and providers to find new ways of fostering informed decision-making in a setting characterized by complexity and uncertainty. As prenatal genetic technology advances, important questions remain about how to structure patient-centered conversations that effectively prepare pregnant patients to make informed choices about the different genetic conditions for which this new form screening may be used.

METHODS:
Focus groups were conducted with 23 pregnant women to identify informational needs and decision-making preferences regarding emerging and anticipated applications of cell-free fetal DNA screening, the newest form of prenatal genetic screening.

RESULTS:
Participants were in favor of obtaining more genetic information about the fetus than provided by conventional screens but acknowledged the challenges inherent in navigating the unique complexities of the decision-making process. The provider-patient relationship was seen as an important resource to navigate the associated uncertainties at each stage of the screening process. Participants emphasized the need for initiatives to support a personalized, accurate, and unbiased discussion about prenatal genetic risk and assessment.

CONCLUSION:
Continued advances in prenatal genetic screening call for new approaches to structure patient-centered communication to facilitate increasingly complex decisions about fetal genetic risk and assessment.



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